40 million kilos in donations to save lots of the Egyptian woman Rokaya

In entrance of her area, the circle of relatives of the Egyptian woman Ruqayya, who suffers from muscular deficiencies, from Alexandria Governorate, celebrated the finishing touch of donations for 40 million kilos, which is the cost of her remedy from the illness.

Nourhan, the lady’s mom, mentioned, “Her daughter Ruqayya was born like any normal child. She did not complain about anything, until she reached the age of 6 months, and symptoms began to appear on her.”

The mom added: “The signs have been Ruqayya’s incapability to face, the shortcoming to move slowly, and the shortcoming to transport her frame from a dozing place. Many, till it used to be showed that Ruqayya had this illness.

Nourhan showed that “as soon as she learned of this, Ruqayya was a year and a half old, and that there is only half a year time, because that injection must be given to the child before the age of two years.”

Nourhan indicated that she “created an account for donations on “Facebook” to communicate the matter to the largest possible number,” and certainly this came about, the place she expressed her wonder.

For his section, Dr. Jamal Shaaban informed RT, explaining the main points of the remedy of Roqaya’s illness: “What is the Roqyah injection that costs 40 million pounds? The Zolgensma injection, which is the first genetic treatment for Spinal muscular atrophy, is specially designed to treat Muscular atrophy caused by a mutation in the SMN1 gene, and the injection was approved by the “FDA” in 2019, and the injection incorporates the lively substance “Onasemnogene Abeparvovec”, which is characterised through its effectiveness
In editing the “SMN1” affected gene, which is accountable for inflicting the illness, right into a wholesome gene, and given to youngsters not up to two years previous.”

And if it is 100% cured, Jamal Shaaban defined: “No, but there is a noticeable improvement in the child’s growth and motor abilities…only one dose during a certain period of time through the vein, by the specialist doctor, and after confirming the level of a certain type of antibody.” Accordingly, the physician determines the effectiveness of the injection for the kid’s situation,” including: “There are other tests before and after receiving the injection periodically, which are liver function tests, platelet testing, and the “troponin 1” take a look at, which is helping the center muscle tissue to contract.

He identified that “the cost of the Zolgensma injection is about (2.1 million dollars), equivalent to 40 million pounds,” wishing the Egyptian well being seek advice from “to negotiate with the producing company to make a special price for Egypt at a very reduced rate, as happened with the Hepatitis C treatment (Sovaldi).”

“Source of This Article:- “https://www.alittihad.ae/news/%D8%AF%D9%86%D9%8A%D8%A7/4296756/40-%D9%85%D9%84%D9%8A%D9%88%D9%86-%D8%AC%D9%86%D9%8A%D9%87-%D9%85%D9%86-%D8%A7%D9%84%D8%AA%D8%A8%D8%B1%D8%B9%D8%A7%D8%AA-%D8%AA%D9%86%D9%82%D8%B0-%D8%A7%D9%84%D8%B7%D9%81%D9%84%D9%87-%D8%A7%D9%84%D9%85%D8%B5%D8%B1%D9%8A%D8%A9-%D8%B1%D9%82%D9%8A%D8%A9

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